Welcome to The Truth About TB

Have you heard of tuberculosis? It is often called TB for short.

Some people know the name, without knowing much about the illness itself. This website should tell you all you need to know about TB.  It contains information on symptoms and risks, keeping yourself and your loved ones safe, treatment and information about your rights. If you want to know more, you can ask us a question, or browse the questions we have already been asked.

Read stories of people who have been affected by TB in the UK, and watch them talk about their real life experiences in our video. If you have had TB, feel free to leave your own story – together we can let everyone know the truth about TB!

 

 

James's TB story

James’ experience of tuberculosis treatment is fresh in his mind and his emotions – 60 years on from being diagnosed with pulmonary TB in December 1952. The fact that he is alive today, to retell his story, is testament to the exciting changes that were happening to TB treatment at the time, with the development of a new range of new drugs. 

Read more about James' experience

Tom's TB story

In 1979, at the age of 19, Tom was admitted to hospital with an excess of fluid around the lungs, and inflammation around the heart. On admission, nobody knew quite how ill Tom was, but he dropped more than two stone in two weeks. Tom was unable to get out of bed and did not want to eat. He also felt cold and shivery, despite sweating constantly.

Read more about Tom's experience…

Gemma's TB story

Gemma first became ill at the beginning of 2009 at the age of 23.

"My first symptom was weight loss - at first I didn't think anything of it. It wasn't till I had lost a stone that I went to the doctor. By this point I was feeling like it was somewhat out of control and I didn't like it. I also suffered from terrible night sweats."

Read more about Gemma's experience

Imla's TB story

As a fitness trainer, and having an interest in alternative therapies, Imla was probably more focused on the mind and body than most people. But that all changed in 2005, when in just eight months he went from cycling 20 miles a day to walking with a stick. Looking back he says the mental challenge of his illness was equally exhausting.

Read more about Imla's experience…

Arthensia's TB story

When Arthensia overheard her doctor discussing TB symptoms she said, ‘That’s it!’

It had taken a year to gain a diagnosis - Arthensia had been prescribed allergy treatment and had even attempted to treat herself with cold remedies. By this time, she had fluid in her lungs and stomach, and an enlarged liver.

Read more about Arthensia's experience…

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